Research & OI

We are pleased to announce continued growth within the osteogenesis imperfecta (OI) network, particularly in advancing research. This work reflects a deepening commitment to understanding the psychological and sociological dimensions of living with OI in the African context.

A recent qualitative study conducted by our founder, Tarela Aghanti, in the Department of Psychology at the University of Bedfordshire, explored the lived experiences of individuals with OI in two African countries, focusing on low-income, resource-constrained settings. The study provides important insight into what it truly means to navigate this condition in environments where access to healthcare, social support, and awareness may be limited.

These findings contribute meaningfully to the expanding body of OI scholarship and amplify the voices of individuals whose perspectives have historically been underrepresented in research. By centring these experiences, we continue to strengthen the global OI research community while fostering more inclusive, context-sensitive approaches to care, advocacy, and policy development.

We also take this opportunity to express our sincere gratitude to all participants who shared their experiences. Their contributions have been invaluable in bringing this work to life and informing future solutions.

We call for increased investment and engagement in OI research across Africa to deepen understanding and improve outcomes for those affected.