The goal of the Osteogenesis Imperfecta Foundation Network (OIFN) is to guarantee that the demands of those who have osteogenesis imperfecta (OI) in the UK and across Africa are recognised, appreciated, and completely satisfied.

In addition to continually support the provision of wheelchairs and other mobility aids and to raise awareness of the condition, OIFN will work to improve the quality of life of individuals with OI in the UK and Africa by offering guidance, information, and signposting.

We will also support and collaborate with other pertinent organisations and stakeholders to advance our efforts to realise our organiation’s goals and objectives as we sincerely care about the empowerment, well-being, and dignity of vulnerable groups, including those with brittle bone disease also known as OI, disabilities, and work to build a more inclusive and equitable society.

1. Set up educational institutions that would give OI children the ability and confidence to communicate effectively.
2. To develop in each OI child self-esteem and a feeling of self-worth
3. We will encourage strong connectivity and effective partnership between parents and their OI organisations, professionals and stakeholders and create networking opportunities.
4. Organise conferences or seminars where specialist doctors are invited from home and abroad to talk aboutthe latest medical discoveries on OI.
5. To be able to recognise their capabilities and maximise their potentials.
6. Show respect to individuals but work collaboratively towards common goals with shared learning outcomes
7. Signposting, information dissemination etc.
8. To create a ‘feel good’ factor so that each OI child feels good about themselves and about what they do.
9. To provide mobility for independent or assisted movement.
10. Raise awareness on brittle bone condition worldwide.