Board of Trustees

Ready to serve you

Board of Trustees

Tarela Aghanti

Tarela Aghanti (SHE)

The Founder & Visionary
Humanitarian Ambassador | Deputy Governor, National Youth Council of Nigeria (NYNC) Europe Chapter | OI & Disability Advocate | West African Regional Coordinator for people with disabilities | Confidence Mentor | Positive Progress Coach | Author | Brand Ambassador UN Delegate for OIFN.

Tarela has received multiple International and National Awards for her humanitarian and empowerment contributions to her community.

In 2018, Tarela was appointed West African Regional Coordinator for people with disabilities.

In June 2020, she founded the Osteogenesis Imperfecta Foundation in Network to support many children, adults, and their families with brittle bone disease.

In 2020, during the covid pandemic, Tarela Aghanti became the author of two books: “Forgiveness is Key and Unbreakable Spirit.” That same year, she founded the Osteogenesis Imperfecta Foundation Network. The network comprises a collaboration of charities, active humanitarians, and organisations that work together to volunteer or provide services and/or provisions to those overcoming adversity.

In 2023, Tarela Aghanti initiated the first OI Corrective Surgery in Nigeria through the OI Foundation.

Tarela Aghanti has empowered over 20 OI mothers to start their businesses by providing them with used clothing items donated to the charity for this purpose, thereby making these resources available to them and enabling them to sustain their families.

Tarela Aghanti encourages other African countries to firmly establish and register their OI organisations to have a strong voice, because she believes we are #StrongerTogether and #Unbreakable.

In 2024, Tarela Aghanti became the first UK Ambassador to the National Youth Council of Nigeria (NYCN) Europe Chapter and was subsequently appointed Deputy Governor of the council, a position she currently holds and has utilised to promote OI awareness and advocacy among council members and under-represented communities across the UK and Europe.

In 2025, she was declared by THISDAY Newspaper Article as one of the Five Women Closing Social Service Gaps in Nigeria.

Tarela Aghanti is a mother who has a child with Osteogenesis Imperfecta (OI), also known as brittle bone disease.

Mabel Okafor

Treasurer (Trustee)

Mabel Okafor is a project analyst by profession and a healthy and well-being artist by passion. Mabel brings both precision and creativity to everything she does. Her message is deeply personal. After being diagnosed with terminal breast cancer and a lover of the OI condition, Mabel embraced a healing journey rooted in her faith. Today, she passionately advocates the 4 F’s of Healthy Therapy: Faith, Food, Fasting, and Fitness, which can also be incorporated by people living with OI and other disabilities. Her passion inspires her approach.

Through her story, Mabel offers practical strategies for well-being grounded in faith, nourished by good food, and strengthened by a holistic view of health. Whether through her writing, speaking, or charity work, she encourages others to believe, heal, live fully, and thrive. She has been a trustee of the Osteogenesis Imperfecta Foundation Network since 2023 to date.

Caroline Harringon Brown

Secretary

Maureen Whitehead

Trustee

Maureen is a diligent and industrious individual who is driven and a hard worker. She is highly motivated and sets high standards for both her personal and professional life. She is generous, dedicated, empathetic, a problem solver, and a team player, always willing to assist, help, and teach others when necessary. She is an optimist, yet realistic, and sensibly handles most of what life throws at her. She is considerate and has a strong capacity for empathy. She is patient and an excellent listener. Maureen is an educator currently working with Eaton Bray Academy in Dunstable, Bedfordshire, and has many years of experience working with children with disabilities, including those with brittle bone disease (OI).

Following the statutory framework guidelines, having a professional regard for the school’s ethos, policies, and practices, such as safeguarding and maintaining high standards of professionalism. Setting high expectations that challenge, inspire, and motivate pupils by establishing a safe and stimulating environment rooted in mutual respect; setting goals that stretch and challenge pupils of all backgrounds, abilities, and dispositions—planned and taught well-structured lessons, considering the needs of all pupils, including those with SEND and EAL. Instil knowledge and develop understanding through effective use of lesson time and adaptive teaching.

Communicate effectively with individuals and hold parental responsibility regarding pupils’ achievements and well-being. Reflect systematically on the effectiveness of lessons and approaches to teaching, contributing to the design and provision of a rich, engaging and stimulating curriculum within the relevant subject area(s) and also monitor pupil progress, set appropriate targets, and plan subsequent lessons; provide pupils with regular and timely feedback, both orally and through accurate marking, encouraging pupils to respond to feedback; reflect on their progress and subsequent emerging needs. Assessment within relevant subject and curriculum areas is used to secure pupils’ progress. Maureen uses appropriate behaviour management techniques to involve and motivate pupils, exercising appropriate authority and acting decisively, when necessary, while maintaining good relationships with them.

She takes on broader professional responsibilities, making positive contributions to the school’s expansive life and ethos, including initiatives such as Black History Month. She develops effective professional relationships with colleagues and knows how and when to draw on advice and specialist support. She effectively deploys support staff and takes responsibility for improving teaching through appropriate professional development, including responding to advice and feedback from colleagues.

Louise Adeleke

Trustee
Mental Health Nurse | Independent Advocate | Legal Professional | Parent Educator | Business Manager UN Delegate for OIFN.

Louise Adeleke is a distinguished mental health professional and independent advocate covering Child protection cases, mental health tribunals, NHS complaints and the Care Act, and a legal practitioner with over 23 years of experience delivering mental health support to vulnerable individuals. She is a Chartered Manager who holds a master’s degree in Mental Health Nursing, a Postgraduate Diploma in Independent Advocacy, and advanced legal training, bringing a powerful blend of clinical, legal, and human rights expertise to her work.

Louise is a strong voice in the global movement to raise awareness and drive systemic change for individuals living with Osteogenesis Imperfecta (OI). As a representative of the Osteogenesis Imperfecta Foundation Network (OIFN) at United Nations conferences, she actively advocates for increased support, visibility, and resources for individuals with OI, especially within under-represented African communities. Her current focus centres on the psychological impact of chronic pain and the psychosocial limitations caused by social isolation and stigma in individuals with OI across Nigeria and the wider African continent. Through research in mental health and disability, Louise explores how lived experiences intersect with cultural perceptions, access to care, and structural inequalities.

A passionate parent educator, she works closely with families and caregivers, equipping them with the tools and understanding to better support children and adults with complex needs. Her work emphasises empathy-driven, culturally appropriate care models.

Louise has been a featured speaker at numerous conferences, both nationally and internationally, where she speaks on:

  • The mental health burden of living with rare genetic disorders
  • Stigma and social exclusion in the African disability context
  • The role of advocacy in shaping policy and community attitudes
  • Building inclusive systems of care through education, policy, and compassion

Known for her heartfelt, informed, and powerful delivery, Louise bridges the gap between research, advocacy, and lived experience. Her mission is clear: to create a world where individuals with OI are not only medically treated but also psychologically supported, socially included, and fully empowered.

Ready to serve you

Board of Trustees

Tarela Aghanti

The Founder & Visionary

Humanitarian Ambassador | Deputy Governor, National Youth Council of Nigeria. (NYNC) Europe Chapter | OI & Disability Advocate | Confidence Mentor | Positive Progress Coach | Author |Brand Amb. UN Delegate for OIFN.

Tarela has received multiple International and National Awards for her humanitarian and empowerment contributions to the community.

In 2016, she founded the Osteogenesis Imperfecta Foundation in Nigeria, where she has supported many children, adults, and their families with brittle bone disease and other mobility-related disabilities by providing mobility aids and bisphosphonate drugs to help strengthen their bones.
In 2018, Tarela was appointed West African Regional Coordinator for people with disabilities.

In 2020, Tarela Aghanti became the author of two books: “Forgiveness is Key and Unbreakable Spirit.” That same year, she founded the Osteogenesis Imperfecta Foundation Network, which became the Apex body for all OI organisations in Africa. This network comprises a collaboration of charities, philanthropists, active humanitarians, and organisations that work together to volunteer or provide services and/or provisions to those overcoming adversity.

In 2023, Tarela Aghanti initiated the first OI Corrective Surgery in Nigeria through the OI Foundation. Tarela Aghanti has empowered over 20 OI mothers to start their businesses.

In 2024, Tarela Aghanti supported other African countries in firmly establishing and registering their OI organisations to have a strong voice because she believes we are Stronger Together and Unbreakable.

Tarela Aghanti became the first UK Ambassador to the National Youth Council of Nigeria (NYCN) Europe Chapter and was subsequently appointed Deputy Governor of the council, a position she currently holds.

In 2025, she was declared by THISDAY Newspaper Article as one

Mabel Okafor

Treasurer (Trustee)

Mabel Okafor is a project analyst by profession and a healthy and well-being artist by passion. Mabel brings both precision and creativity to everything she does. Her message is deeply personal. After being diagnosed with terminal breast cancer and a lover of the OI condition, Mabel embraced a healing journey rooted in her faith. Today, she passionately advocates the 4 F’s of Healthy Therapy: Faith, Food, Fasting, and Fitness, which can also be incorporated by people living with OI and other disabilities. Her passion inspires her approach.

Through her story, Mabel offers practical strategies for well-being grounded in faith, nourished by good food, and strengthened by a holistic view of health. Whether through her writing, speaking, or charity work, she encourages others to believe, heal, live fully, and thrive. She has been a trustee of the Osteogenesis Imperfecta Foundation Network since 2023 to date.

Caroline Harringon Brown

Secretary

Maureen Whitehead

Trustee

Maureen is a diligent and industrious individual who is driven and a hard worker. She is highly motivated and sets high standards for both her personal and professional life. She is generous, dedicated, empathetic, a problem solver, and a team player, always willing to assist, help, and teach others when necessary. She is an optimist, yet realistic, and sensibly handles most of what life throws at her. She is considerate and has a strong capacity for empathy. She is patient and an excellent listener. Maureen is an educator currently working with Eaton Bray Academy in Dunstable, Bedfordshire, and has many years of experience working with children with disabilities, including those with brittle bone disease (OI).

Following the statutory framework guidelines, having a professional regard for the school’s ethos, policies, and practices, such as safeguarding and maintaining high standards of professionalism. Setting high expectations that challenge, inspire, and motivate pupils by establishing a safe and stimulating environment rooted in mutual respect; setting goals that stretch and challenge pupils of all backgrounds, abilities, and dispositions—planned and taught well-structured lessons, considering the needs of all pupils, including those with SEND and EAL. Instil knowledge and develop understanding through effective use of lesson time and adaptive teaching.

Communicate effectively with individuals and hold parental responsibility regarding pupils’ achievements and well-being. Reflect systematically on the effectiveness of lessons and approaches to teaching, contributing to the design and provision of a rich, engaging and stimulating curriculum within the relevant subject area(s) and also monitor pupil progress, set appropriate targets, and plan subsequent lessons; provide pupils with regular and timely feedback, both orally and through accurate marking, encouraging pupils to respond to feedback; reflect on their progress and subsequent emerging needs. Assessment within relevant subject and curriculum areas is used to secure pupils’ progress. Maureen uses appropriate behaviour management techniques to involve and motivate pupils, exercising appropriate authority and acting decisively, when necessary, while maintaining good relationships with them.

She takes on broader professional responsibilities, making positive contributions to the school’s expansive life and ethos, including initiatives such as Black History Month. She develops effective professional relationships with colleagues and knows how and when to draw on advice and specialist support. She effectively deploys support staff and takes responsibility for improving teaching through appropriate professional development, including responding to advice and feedback from colleagues.

Ready to serve you

Board of Trustees

Tarela Aghanti

Founder/President

Mabel Okafor

Treasurer

Caroline Harringon Brown

Secretary

Maureen Whitehead

Member