Mental health is a critical component of overall well-being for individuals living with Osteogenesis Imperfecta (OI), yet emotional and psychological needs are often overshadowed by a primary focus on physical care.

Research findings and insights from the OI community highlight a strong and growing need for focused mental health support, particularly in the areas of emotional resilience, coping, and social connection.

Many mental health challenges associated with OI—such as anxiety, depression, trauma, social isolation, and caregiver burnout—develop gradually and may go unnoticed until they become severe.

This initiative adopts a prevention-first approach, prioritising early awareness and intervention to catch mental health challenges before they escalate, rather than responding only after a crisis occurs.

Thriving, Not Just Surviving emphasises early identification of emotional distress, practical intervention strategies, and access to appropriate support systems.

The event provides a compassionate and inclusive platform for individuals with OI, families, caregivers, and professionals to engage in meaningful dialogue, shared learning, and collective support.

By integrating mental health intervention into the broader OI care framework, this initiative aims to strengthen resilience, improve mental health literacy, and promote long-term well-being—ensuring individuals with OI are supported not only to survive, but to truly thrive.