Osteogenesis Imperfecta Foundation Network (OIFN) is a registered charity in the UK. (Registration Number: 1190022). We work with and assist people with brittle bone conditions (OI). This condition affects an individual’s bones and soft tissue, making their bones very fragile, and resulting in stable fractures.

OIFN raises money for life-changing bone strengthener medication called bisphosphonate drug taken every 6 months and corrective surgery for children diagnosed with the brittle bone condition (OI).

Finding out their children have this condition without proper knowledge or support from birth has been challenging and devastating for parents and their families; even though they hope their situations will improve with time it didn’t as expected; some children have been abandoned by their fathers leaving their mothers to care for them, some have blamed the mothers, faulting them to be the cause of the children’s condition and deformity inflicting deep emotional pain. In their quest for answers, the mothers have found our foundation, read more about the disease, and reached out to us to help.

Some of these children have been fortunate to have both parents supporting them. Still, the situation is challenging living in Africa, with little or no knowledge of these conditions and with no adequate support. This is where OIFN comes in to give support by providing bisphosphonate medication and life-changing corrective surgery and adequate training for medical personnel, collaborating with local hospitals for future treatment.

These children suffer many painful fractures in their little lives and have deformation on, or both arms, legs, and other parts of their bodies. With this life-changing rodding surgery, these children would have a good chance to better lives.

Please support us today by donating to help these children.