Osteogenesis Imperfecta Foundation Network [OIFN]
Osteogenesis Imperfecta Foundation Network [OIFN]
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Testimonials

Testimonials

What they’re talking
about us

“My name is Blessing and my son’s name is Adeola and he is a cerebral palsy patient, he can’t move on his own, chew and talk a lot of difficulties.

All this while I have been at home with him alone I can’t go out because he can’t move, I don’t have a wheelchair or anything to support him to move. But because of this programme I have been able to get a wheelchair and with it we can go out and we can see places.

I am so grateful to the founder of this programme without her I don’t know how I am going to afford this, now I have gotten it free of charge and I pray God continue to bless her”.

 

Adeola got deformed at the age of 2 years and has speech difficulties. He is 8 years old now and it’s very difficult moving him around.

But with the wheelchair it will now be easy for his Mum to move him around and carry out her house chores. She is happy and grateful.

My name is Dare and I am living with cerebral palsy as occasioned from birth.

It’s being very challenging growing up and having to go through my day to day activities. It really has been traumatising for knowing I can’t lead a normal day to day life like my peers.

Academically, it was frustrating because there were no specialised centres where I could write my entry examination. As a result I couldn’t score the required mark to study my preferred course Medicine and Surgery.

Today, I feel a gap has been filled up with this gift of a wheelchair by the foundation because before now, I have been contemplating how to raise funds to repair my old dilapidated wheelchair.

I want to us this opportunity to thank all the people involved in making this possible. I am gratified to have a new wheelchair because now I can move from point a to ponit b, without the worry or fear that the tyres of my wheelchair would go bad that may result in a mishap.

I am a graduate of Biology Education.

My name is Rashidat Sanusi Oladunni, I have higher national diploma in banking and finance, and a mother of two sons HARRY and PERRY.

Perry was born with osteogenesis imperfecta (OI) also know as brittle Bone disease, a condition that causes the bone to fracture or break easily. I wasn’t aware of my son condition, as I believed I had a perfect pregnancy, until I had a scan at the 7th month of his pregnancy, then the stenographer told me my son’s limbs are short that he is likely to be a dwarf and asked if anyone has had such condition in our family, and I told him no one has such a condition in our family.

When I eventually gave birth to him (normal delivery) his legs were looking like that of a frozen chicken’s legs and were bowed. I think he fractured when I gave birth to him because anytime I carry him he cries, when we got back home one day after breastfeeding him I laid him down to sleep only for him to wake up, and when I picked him he started crying loudly, later on I found out his hand was swollen like the bone was broken.

I got to know about the foundation from a doctor at the orthopedic hospital and life changed as a result. When I met the founder outside of the fact that my son didn’t qualify for the surgery and I told her I wanted to start a Point of Sale business, she promised to help because it was difficult getting a regular paid job because of Perry’s condition.

One day she called me and sent a driver to give me about two bails of clothes and toys to sell and see how that would help with setting up my intended business. Today as I am talking to you I can feed my child and myself and I am so grateful to her, without this foundation I don’t know where I would be. People look at me like a strong woman doing what I am doing with a disabled child and not begging as some do, but this is all thanks to the foundation, I am very grateful for your help and assistance.

Boluwatife, is a young man of age 18, and is expressing his excitement to the organiser’s for the great change in fortune, and how the given wheelchair would make life better for him.

He feels happy receiving the wheel chair and commented its a blessing from God. He wishes OIFN and TTR the very best as they impact people’s life positively.

“I just received a wheelchair from the foundation I am so happy and thank you so much may God continue to bless you, yeah I have a new wheelchair”.

“I want to say thank you for giving Janet a very good wheelchair and for the hospitality. We really do appreciate. May God bless and uplift you all in Jesus name, Amen”

Janet is a 17 years old special child that was born with cerebral palsy ,we have been doing our best to support her also since then, she once attend a special school called Atunda Olu School,  Adeniran Ogunsanya, Surulere, Lagos.

She couldn’t finish her studies before we moved from the area and since then she hasn’t been able to attend school around our new home because there is no special school around.

Janet is a bright and happy child and we have been supporting her to feel better and have self esteem.

Not until we met Osteogenesis Imperfecta Foundation that gave us a new and balanced wheelchair from Through the Roof which made Janet very glad when she received it. I think a new start up or improvement will begin from here, thank you so much and God bless you in Jesus name.

Well, I was about a year old when it all happened.

My mother had given me a birth and placed me on the bed, when suddenly she had to come to my aid when she heard me shout.

When she got to the room, a snake was found on the bed with me, the snake was killed and afterwards I couldn’t walk again.

And I haven’t been able to walk ever since again without a walking aid. That is over 55years now.

It has not been easy one just have to cope with the pain and the psychological problems that come with living with disability.

I feel good now that I have a wheelchair, this will enable me now to easily move around and also engage in chores around the house. Age is telling on me and with what the foundation and her partners have done today, my everyday life would greatly be positively affected.

This is a welcome development and this would go a long way to give people living with disabilities a sense of belonging.

I can’t thank the foundation enough for this wonderful work they are doing.

DELTA OUTREACH

I really don’t know exactly what happened. On a particular day my mum left me at home for the farm. I was two years old at the time.

Upon her return she called out to me to come take in the fresh snails she come home with. That was when it was discovered I couldn’t move. She asked my father who she left me with what happened, he said nothing that he too don’t understand what was happening.

Then my parents start taking me from one herbal medicine home to another but nothing changed. I could not sit and walk until they took me to one herbal medicine woman before I was able to sit.

Life has been up and down ever since, I made an effort to get my primary school leaving certificate and learned shoe making afterwards.

In 2021 my old wheelchair packed up and the meagre income from my shoe making can’t allow for a replacement. I earnestly wished for one.

Today, after getting word about the free wheelchairs distribution by OIF Nigeria, I presented myself and thankfully I have a new wheelchair.

I’m so happy for the wheelchair may God bless everyone who made this possible. The work and families would continue to prosper.

This would go a long way to make life easier for me now. Thank you.

I wasn’t born a cripple this came about due to an unfortunate play gone south when I was 7 years old. This happened around December of 2009.

On the day I took something off my brother and dashed across the road. As I made the return attempt to re-cross the road I was knocked down by a vehicle.

After which I was rushed to the hospital and I was treated by the junior doctors on duty, as the senior doctors had gone on Christmas holiday. When the senior doctors returned it was discovered that I was being wrongly treated.

They called for a new treatment plan for me. That’s when they discovered I had a spinal cord injury and as such I won’t be able to walk again. It took over 3 months before I could even talk, after about a year I was discharged from the hospital.

Life took a turn and became unpleasant, I could not go to school because of attending issues such as involuntary peeing and bowel movement.

Today, I am grateful to OIF Nigeria and the founder for this great gift. I don’t have words enough to say thank to the foundation. God bless you all.

My name is Patience Ifeanyi, the mother of Chioma. Well, I gave birth to her 11 years ago, her condition started manifesting when she was not showing any signs of walking neither was she sitting up and all that.

So, China taken to the hospital there we were asked to see a bone doctor. It was there they referred us to UBTH in Benin, Edo State. But at the end of the day didn’t take her to the University of Benin Teaching Hospital as we couldn’t afford the money.

We resulted to church for prayers with hope that she would get healed.

At moment she can sit by herself but she can’t walk nor talk.

A friend of ours told us about the programme and advised us to come and here we are. I see that the organisers are giving out a lot of things, walking sticks, clutches and wheelchairs.

As I am talking to you now they have given my daughter a brand new wheelchair. I am thanking them because I never thought that such a help can come to me and my family. God will bless them for the

Well, I was 5 years old when it all happened and that’s about twenty-seven years ago.

But it was when I was seven that my mother now told me about what happened. She explained that on the faithful day, I was sleeping and in the middle of the night they heard me shouting. They came to me and calmed me and at dawn I discovered I couldn’t move my body.

At that point they took me to a native doctor’s place. I was able to regain function in my two hands but I could not still use my legs. After several years of going to different native homes nothing changed.

It’s being challenging and life generally has been tough. I was unable to attend school as well.

So, when I heard that OIF Nigeria is going to be giving out wheelchairs I made sure I attended the outreach.  As over the years I have been unable to afford to buy a wheelchairs.

I came here today and thankfully I have a brand new wheelchair courtsey of OIF Nigeria.

This is a life changing experience for me and I can’t thank the foundation and her supporters enough.

This gift of hope would make life better for me.

My name is Romeo Omasho, I am 40 years old married with 3 children.

Well, I was a truck driver until 2007 when I had an accident with my truck. On the faithful day I took off from the loading point and was headed for Ekwulobia when the unfortunate accident occurred.

As a result I was taken to University of Benin Teaching Hospital, were I was admitted and my legs were put on plaster of Paris for over a month.

Afterwards, a review was carried out and eventually I was told that my legs would have to be amputated. This is because vein function in the legs has gone.

Ever since then life hasn’t been the same, if not for family support here and there only God know what the situation would have been.

Well, I came here today due to the information from a known person, who told me about the distribution of free wheelchairs in Agbor.

I was happy with the news because for over a year now, I have been desirous of a new wheelchair because the old one has gone bad. And since I can’t afford to buy a new one, I made it a point of duty to be present here today.

I am very, very much happy about the wheelchair, may God continue to lift all those who made this possible.

I am delighted to a part of those who are benefiting from this kindness of the foundation.

My name is Mercy the mother of Flavour Nduka.

It all started three days after his birth when he began having repeated convulsion episodes.

That began our hospital journey as it was revealed to us after 6 months,  when he was taken to the hospital as a result of another episode, that the injection administered to him the first time had caused a lot of damage and had caused paralysis.

As it Flavour cannot talk but he hears. It’s being quite a challenging journey for both of us and the family generally.

The one challenge that has stood out is mobility. I have always had to carry him about. It’s difficult to leave him alone but today I am most delighted. Flavour has been blessed with a wheelchair. This would greatly impact our mobility, now I don’t have to carry him anymore.

May God bless the foundation and all others involved in this great work, Flavour and I truly appreciate this good thing you have done for us.

Well, I was three years old when it all happened, I caught a fever and was taken to the hospital, two days after I lost function in my legs.

Thereafter my mother and I left for Ikot Ekpene Hospital in Calabar where we were referred to. The hospital carried out an operation and promised I would regain function in the legs.

We stayed six months at the hospital with no change or improvement of any sort. The hospital then transferred me to Ettina Hospital also in Calabar. After a year on admission and nothing changed my mum and I returned to Agbor.

Upon return I was able to start and finish my primary education. For lack of funds I could not continue, so I decided to learn hairdressing as a vocation.

Life for me ever since has been one for survival, tough and a case of hand to mouth.

Over the past year my 11 year old wheelchair became unusable and since I do not have the fund to pay for one, I have been praying to God for a miracle and thank God I received my miracle.

I got wind of the free wheelchairs distribution through the chairman of the association of People Living with Disabilities. And when I got here today and after the people accessed me I was given a new wheelchair.

Right now I am feeling very happy, I have been longing for this for a long time now and today I got it for free. I am grateful to the foundation for the gesture. A very big thank you for what you have done for me.